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Written by Jimmie C. Holland MD and Sheldon Lewis

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RESOURCES FOR PARTICULAR CANCERS

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Brain Tumors
Breast Cancer
Gastrointestinal Cancer
Kidney Cancer
Prostate Cancer
Gynecologic Cancer
Leukemia
Lung Cancer
Lymphoma
Multiple Myeloma

BRAIN TUMORS

American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, 1160018
800-886-2282 fax: 847-827-9918
e-mail: info@abta.org
website: www.abta.org
Offers free publications on brain tumors, social service consultations by telephone, a mentorship program, support group lists, a resource list of physicians, and a pen pal program; Also funds research nationwide.

The Brain Tumor Society
124 Watertown Street, Suite 3-H
Watertown, MA 02472
617-924-9997 fax: 617-924-9998
e-mail: info@tbts.org
website: www.tbts.org
Provides individualized patient and family information, publishes educational materials, sponsors professional and patient conferences, and funds research.

National Brain Tumor Foundation
785 Market Street, Suite 1600
San Francisco, CA 94103
800-934-CURE, 415-281-0208 fax: 415-284- 0209
e-mail: nbtf@braintumor.org
website: www.braintumor.org
Raises funds for brain tumor research; provides support by offering contact with other brain tumor patients, information about treatment and local confer- ences, a listing of support groups, assistance starting support groups, and a newsletter.

 

BREAST CANCER

The Susan G. Komen Breast Cancer Foundation
5005 1BJ Freeway, Suite 250
Dallas, TX 75244
800-I'M AWARE (800-462-9273) fax: 972-855-4301
e-mail: helpline@komen.org
website: www.breastcancer-info.com
Dedicated to eradicating breast cancer as a life-threatening dis- ease by advancing research, education, screening, and treatment. Awards millions of dollars worth of grants and fellowships annually for ground- breaking breast cancer research.

National Alliance of Breast Cancer Organizations (NABCO)
9 East 37th Street, 10th Floor
New York, NY 10016
888-80-NABCO fax: 212-689-1213
e-mail: NABCOinfo@aol.com
website: www.nabco.org
A network of more than four hundred organizations that provide detection, treatment, and care to American women. Offers information, assistance, and referral to anyone with questions about breast cancer; educates the public about the disease; links underserved women to medical services; and acts as a voice for the interests and concerns of breast cancer survivors and women at risk.

National Breast Cancer Coalition
1707 L Street Nw; Suite 1060
Washington, DC 20036
202-296-7477 fax: 202-265-6854
website: www.stopbreastcancer.org
A grassroots advocacy organization whose goals are to increase federal funding for breast cancer research, influence how those dollars are spent, and improve access to high-quality health care for all women. Consists of more than five hundred member organizations and sixty thousand individual members throughout the United States.

National Lymphedema Network, Inc.
2211 Post Street, Suite 404
San Francisco CA 94115-3427
415-921-1306, 800-541-3259 fax: 415-921-4284
e-mail: nln@lymphnet.org
website: www.lymphnet.org
Publishes a quarterly newsletter, provides referrals, presents a biennial national conference, and offers educational materials for purchase.

SHARE Programs
1
501 Broadway, Suite 1720
New York, NY 10036
212-719-0364
website: www.sharecancersupport.org
Provides self-help programs for women with breast or ovarian cancer free of charge. Locations in New York City boroughs. Hotlines offer peer support in English and Spanish. Services include group support, wellness programs, Latina Share, education and advocacy efforts, and study of alternative/whole health issues.

Y-ME. National Breast Cancer Organization
212 West Van Buren
Chicago,IL 60607
800-221-2141 (24-hour), 800-986-9505 (24-hour Spanish)fax: 312-294-8597
e-mail: help@y-me.org
website: www.y-me.org
Hotline counseling; educational programs; open-door meetings for breast cancer patients, their families, and friends; and a Y-ME Men's Support Line.

GASTROINTESTINAL CANCER

The Oley Foundation
214 Hun Memorial, A-23 Albany Medical Center
Albany, NY 12208-3478
518-262-5079 fax: 518-262-5528
website: www.wizvax.net/oleyfdn
Provides free information and psychosocial support to patients fed by tube or IV at home who cannot be sustained by normal eating because part of their gastrointestinal tract is damaged or removed. However, it does not provide financial support or oral nutrition
counseling.

United Ostomy Association. Inc.
1
9772 MacArthur Boulevard, Suite 200
Irvine, CA 92612-2405
800-826-0826, 949-660-8624 fax: 949-660-9262
e-mail: uoa@deltanet.com
website: www.uoa.org
Association of chapters dedicated to the complete rehabilitation of all ostomates.

 

KIDNEY CANCER

Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1375
800-850-9132 fax: 847-332-2978
e-mail: cdixon@NKCA.org
website: www.nkca.org
Works to increase the survival of kidney cancer patients and improve their care by providing information, sponsoring research, and acting as an advocate.

 

PROSTATE CANCER

American Foundation for Urologic Disease (AFUD)
1128 North Charles Street
Baltimore, MD 21201
410-468-1800, 800-242-2383 fax: 410-468-1808
e-mail: admin@afud.org
websites: http://www.afud.org www.prostatehealth.com
Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness, and advocacy programs, including the Prostate Cancer Network.

Association for the Cure of Cancer of the Prostate (CaP CURE)
1250 4th Street, Suite 360
Santa Monica, CA 90401
800-757-CURE
website: www.capcure.org

Man-to-Man
800-ACS-2345
Prostate cancer education and support program sponsored by the American Cancer Society. In some locations, Side by Side, a program for men with prostate cancer and their partners, is also available.

National Prostate Cancer Coalition
1158 15th Street Nw
Washington, DC 20005
202-463-9455
website: www.4npcc.org

Patient Advocates for Advanced Cancer Treatments (PAACT)
1143 Parmelee Nw
Grand Rapids, MI 49504
616-453-1477 fax: 616-453- 1846
e-mail: pca@pcapaactinc.com
website: www.osz.com/paact
An association for both patients and physicians concerned with diagnostic methods and treatments of prostate cancer.

Us TOO International Inc. and US TOO Partners (for spouses)
930 North York Road, Suite 50
Hinsdale, IL 60521-2993
800-808-7866, 630-323-1002 fax: 630-323-1003
e-mail: ustoo@ustoo.com
website: www.ustoo.com
Support groups provide prostate cancer survivors and their families with emotional and educational support through a network of groups and a quarterly newsletter.

 

GYNECOLOGIC CANCER

National Ovarian Cancer Coalition
2335 East Atlantic Boulevard, Suite 401
Pompano Beach, FL 33062
888-0VARIAN, 954-781-3500 fax: 954-781-3525
e-mail: NOCC@ovarian.com
website: www.ovarian.org
Raises awareness about ovarian cancer and promotes education regarding facts, issues, and problems.

The Ovarian Cancer Connection
P.O. Box 7948
Amarillo, TX 79114-7948
806-355-2565 fax: 806-467-9757
e-mail: chmelancon@aol.com
website: www.ovarian.news.com
Publishes CONVERSATIONS! The Newsletter for Those Fighting Ovarian Cancer; a monthly international newsletter providing hope, support, and information. Survivor-to-fighter matching service available.

Ovarian Cancer National Alliance
1627 K Street Nw; 12th Floor
Washington, DC 20006
202-331-1332 fax: 202-293-1990
e-mail: ovarian@aol.com
website: www.ovariancancer.org
A consumer-led umbrella organization dedicated to educating the public and the physicians who are likely to encounter the disease first about its symptoms, as well as advocating for more research, improved treatments, and a cure.

YWCA of the U.S.A.
Office of Women's Health Initiatives, ENCOREplus Program
624 9th Street Nw; 3rd Floor
Washington, DC 20001-5303
202-628-3636 fax: 202-783-7123
e-mail: cgould@ywca.org
website: www.ywca.org
Targets medically underserved women in need of early detection, education, breast and cervical cancer screening, and support
servIces.

 

LEUKEMIA

Leukemia Society of America
600 Third Avenue
New York, NY 10016
800-955-4LSA (educational materials), 212-573-8484 (general
information) fax: 212-856-9686
website: www.leukemia.org
Dedicated to seeking the cause and eventual cure of leukemia and related cancers (lymphoma, Hodgkin's disease, and myeloma). Programs include research, patient aid, peer support, family support groups, and education.

 

LUNG CANCER

Alliance for Lung Cancer Advocacy, Support and Education
(ALCASE)

1601 Lincoln Avenue
Vancouver, WA 98660
800-298-2436 fax: 360-699-1944
e-mail:info@alcase.org
website: www:alcase.org
Dedicated solely to helping people living with lung cancer. Programs are geared toward education about the disease, psychosocial support, and advocacy issues.

American Lung Association
1740 Broadway, 14th Floor
New York, NY 10019-4374
800-LUNG-USA, 212-315-8700 fax: 212-265-5642
e-mail: info@1ungusa.org
website: www.lungusa.org
Dedicated to preventing lung disease and promoting lung health.

 

LYMPHOMA

Cure for Lymphoma Foundation
2 15 Lexington Avenue
New York, NY 10016
800-CFL-6848, 212-213-9595 fax: 212-213-9595
e-mail:infocfl@cfl.org
website: www.cfl.org
Funds lymphoma research. Provides support and educational materials via quarterly newsletter, informational booklets, fact sheet, and comprehensive lymphoma library.

Lymphoma Research Foundation of America. Inc.
8800 Venice Boulevard, #207
Los Angeles, CA 90034
310-204-7040 fax: 310-204- 7043
e-mail: LRFA@aol.com
website: www.lymphoma.org
Funds lymphoma research and provides information and emotional support to patients and caregivers through educational materials, the Lymphoma Helpline, the national Cell-Mates buddy program linking patients, a quarterly newsletter, support groups, an annual patient educational forum, and local seminars. Sponsors National Lymphoma Awareness Week, Lymphoma Advocacy Day, and an annual Lymphoma Think Tank.

 

MULTIPLE MYELOMA

International Myeloma Foundation
2129 Stanley Hills Drive
Los Angeles, CA 90046
800-452-CURE fax: 323-656-1182
e-mail: TheIMF@aol.com
website: www.myeloma.org
Promotes education, funds research, holds patient and family seminars and clinical and scientific conferences. Publishes a quarterly newsletter, Myeloma Today.

Multiple Myeloma Research Foundation (MMRF)
11 Forest Street
New Canaan, CT 06840
203-972-1250 fax: 203-972-1259
website: www.multiplemyeloma.org
Supports research and professional symposia on multiple myeloma and related cancers. Publishes a quarterly newsletter and provides referrals and information to patients and family members.

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