RESOURCES FOR PARTICULAR
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American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, 1160018
800-886-2282 fax: 847-827-9918
Offers free publications on brain tumors, social service consultations
by telephone, a mentorship program, support group lists, a resource
list of physicians, and a pen pal program; Also funds research
The Brain Tumor Society
124 Watertown Street, Suite 3-H
Watertown, MA 02472
617-924-9997 fax: 617-924-9998
Provides individualized patient and family information, publishes
educational materials, sponsors professional and patient conferences,
and funds research.
National Brain Tumor Foundation
785 Market Street, Suite 1600
San Francisco, CA 94103
800-934-CURE, 415-281-0208 fax: 415-284- 0209
Raises funds for brain tumor research; provides support by offering
contact with other brain tumor patients, information about treatment
and local confer- ences, a listing of support groups, assistance
starting support groups, and a newsletter.
The Susan G. Komen Breast Cancer Foundation
5005 1BJ Freeway, Suite 250
Dallas, TX 75244
800-I'M AWARE (800-462-9273) fax: 972-855-4301
Dedicated to eradicating breast cancer as a life-threatening dis-
ease by advancing research, education, screening, and treatment.
Awards millions of dollars worth of grants and fellowships annually
for ground- breaking breast cancer research.
National Alliance of Breast Cancer Organizations
9 East 37th Street, 10th Floor
New York, NY 10016
888-80-NABCO fax: 212-689-1213
A network of more than four hundred organizations that provide
detection, treatment, and care to American women. Offers information,
assistance, and referral to anyone with questions about breast
cancer; educates the public about the disease; links underserved
women to medical services; and acts as a voice for the interests
and concerns of breast cancer survivors and women at risk.
National Breast Cancer Coalition
1707 L Street Nw; Suite 1060
Washington, DC 20036
202-296-7477 fax: 202-265-6854
A grassroots advocacy organization whose goals are to increase
federal funding for breast cancer research, influence how those
dollars are spent, and improve access to high-quality health care
for all women. Consists of more than five hundred member organizations
and sixty thousand individual members throughout the United States.
National Lymphedema Network, Inc.
2211 Post Street, Suite 404
San Francisco CA 94115-3427
415-921-1306, 800-541-3259 fax: 415-921-4284
Publishes a quarterly newsletter, provides referrals, presents
a biennial national conference, and offers educational materials
1501 Broadway, Suite 1720
New York, NY 10036
Provides self-help programs for women with breast or ovarian cancer
free of charge. Locations in New York City boroughs. Hotlines
offer peer support in English and Spanish. Services include group
support, wellness programs, Latina Share, education and advocacy
efforts, and study of alternative/whole health issues.
Y-ME. National Breast Cancer Organization
212 West Van Buren
800-221-2141 (24-hour), 800-986-9505 (24-hour Spanish)fax: 312-294-8597
Hotline counseling; educational programs; open-door meetings for
breast cancer patients, their families, and friends; and a Y-ME
Men's Support Line.
The Oley Foundation
214 Hun Memorial, A-23 Albany Medical
Albany, NY 12208-3478
518-262-5079 fax: 518-262-5528
Provides free information and psychosocial support to patients
fed by tube or IV at home who cannot be sustained by normal eating
because part of their gastrointestinal tract is damaged or removed.
However, it does not provide financial support or oral nutrition
United Ostomy Association. Inc.
19772 MacArthur Boulevard, Suite
Irvine, CA 92612-2405
800-826-0826, 949-660-8624 fax: 949-660-9262
Association of chapters dedicated to the complete rehabilitation
of all ostomates.
Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1375
800-850-9132 fax: 847-332-2978
Works to increase the survival of kidney cancer patients and improve
their care by providing information, sponsoring research, and
acting as an advocate.
American Foundation for Urologic Disease
1128 North Charles Street
Baltimore, MD 21201
410-468-1800, 800-242-2383 fax: 410-468-1808
Dedicated to the prevention and cure of urologic diseases through
the expansion of research, education, awareness, and advocacy
programs, including the Prostate Cancer Network.
Association for the Cure of Cancer of
the Prostate (CaP CURE)
1250 4th Street, Suite 360
Santa Monica, CA 90401
Prostate cancer education and support program sponsored by the
American Cancer Society. In some locations, Side by Side, a program
for men with prostate cancer and their partners, is also available.
National Prostate Cancer Coalition
1158 15th Street Nw
Washington, DC 20005
Patient Advocates for Advanced Cancer
1143 Parmelee Nw
Grand Rapids, MI 49504
616-453-1477 fax: 616-453- 1846
An association for both patients and physicians concerned with
diagnostic methods and treatments of prostate cancer.
Us TOO International Inc. and US TOO Partners
930 North York Road, Suite 50
Hinsdale, IL 60521-2993
800-808-7866, 630-323-1002 fax: 630-323-1003
Support groups provide prostate cancer survivors and their families
with emotional and educational support through a network of groups
and a quarterly newsletter.
National Ovarian Cancer Coalition
2335 East Atlantic Boulevard, Suite
Pompano Beach, FL 33062
888-0VARIAN, 954-781-3500 fax: 954-781-3525
Raises awareness about ovarian cancer and promotes education regarding
facts, issues, and problems.
The Ovarian Cancer Connection
P.O. Box 7948
Amarillo, TX 79114-7948
806-355-2565 fax: 806-467-9757
Publishes CONVERSATIONS! The Newsletter for Those Fighting Ovarian
Cancer; a monthly international newsletter providing hope, support,
and information. Survivor-to-fighter matching service available.
Ovarian Cancer National Alliance
1627 K Street Nw; 12th Floor
Washington, DC 20006
202-331-1332 fax: 202-293-1990
A consumer-led umbrella organization dedicated to educating the
public and the physicians who are likely to encounter the disease
first about its symptoms, as well as advocating for more research,
improved treatments, and a cure.
YWCA of the U.S.A.
Office of Women's Health Initiatives, ENCOREplus Program
624 9th Street Nw; 3rd Floor
Washington, DC 20001-5303
202-628-3636 fax: 202-783-7123
Targets medically underserved women in need of early detection,
education, breast and cervical cancer screening, and support
Leukemia Society of America
600 Third Avenue
New York, NY 10016
800-955-4LSA (educational materials), 212-573-8484 (general
information) fax: 212-856-9686
Dedicated to seeking the cause and eventual cure of leukemia and
related cancers (lymphoma, Hodgkin's disease, and myeloma). Programs
include research, patient aid, peer support, family support groups,
Alliance for Lung Cancer Advocacy, Support
1601 Lincoln Avenue
Vancouver, WA 98660
800-298-2436 fax: 360-699-1944
Dedicated solely to helping people living with lung cancer. Programs
are geared toward education about the disease, psychosocial support,
and advocacy issues.
American Lung Association
1740 Broadway, 14th Floor
New York, NY 10019-4374
800-LUNG-USA, 212-315-8700 fax: 212-265-5642
Dedicated to preventing lung disease and promoting lung health.
Cure for Lymphoma Foundation
2 15 Lexington Avenue
New York, NY 10016
800-CFL-6848, 212-213-9595 fax: 212-213-9595
Funds lymphoma research. Provides support and educational materials
via quarterly newsletter, informational booklets, fact sheet,
and comprehensive lymphoma library.
Lymphoma Research Foundation of America.
8800 Venice Boulevard, #207
Los Angeles, CA 90034
310-204-7040 fax: 310-204- 7043
Funds lymphoma research and provides information and emotional
support to patients and caregivers through educational materials,
the Lymphoma Helpline, the national Cell-Mates buddy program linking
patients, a quarterly newsletter, support groups, an annual patient
educational forum, and local seminars. Sponsors National Lymphoma
Awareness Week, Lymphoma Advocacy Day, and an annual Lymphoma
International Myeloma Foundation
2129 Stanley Hills Drive
Los Angeles, CA 90046
800-452-CURE fax: 323-656-1182
Promotes education, funds research, holds patient and family seminars
and clinical and scientific conferences. Publishes a quarterly
newsletter, Myeloma Today.
Multiple Myeloma Research Foundation (MMRF)
11 Forest Street
New Canaan, CT 06840
203-972-1250 fax: 203-972-1259
Supports research and professional symposia on multiple myeloma
and related cancers. Publishes a quarterly newsletter and provides
referrals and information to patients and family members.
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